4th Annual Symposium and Workshop: Precision Health

Ann Arbor, Michigan

The vision of learning health systems is to improve health and care by continuously turning health data into actionable knowledge. Precision medicine, the approach to prevention, diagnosis and treatment that takes individual factors like genes and behaviors into account, is a pathbreaking force in institutions that are increasingly realizing the LHS vision.

The 2019 symposium on the Ethical, Legal, & Social Implications of Learning Health Systems (ELSI-LHS) will focus on precision medicine this year, with an amazing lineup of speakers providing perspectives from a variety of fields, from computer science and medicine to anthropology and law. Topics will explore ethics, equity, active learning health initiatives, and future directions for innovation and research.

Conference Title: Ethical, Legal and Social Implications of Learning Health Systems

Date / Time: Wednesday, November 6 from 9 a.m. to 4 p.m. and Thursday, November 7, 2019 – 8:30 a.m. to 3:00 p.m.

Location: University of Michigan’s Palmer Commons, 100 Washtenaw Avenue, Ann Arbor, Michigan 48109

Registration: To register for this free event, register here. Breakfast and lunch are included in the registration. 

Hotel Details: Visit the website  for suggested accomodations near the campus.

For Additional Conference Information: Visit the website 

Speakers and Agenda (for additional details, click on the link):

Wednesday, November 6

  • Session 1 - Jack Hosty (Indiana University), “Ethics of Precision Oncology Framed as a Learning Healthcare System” and Colin Halverson (Indiana University), “The Ethical Challenges of Returning Genetic Test Results from Unselected Cohorts”

Thursday, November 7

  • Session 2 – Industry, Precision Health & Ethics, Jenna Wiens (University of Michigan) and Jake Sherkow (Harvard University)
  • Session 3 – Policy and Privacy in LHS; Stephanie Morain (Baylor College of Medicine), "Ethics and Collateral Findings in Pragmatic Clinical Trials"; Marielle Gross, “’Game Over’ for Deidentified Data: Calls from Justice, Respect and Beneficence”; Robert Miller (ConsenSys) – “Health Data Trends and Governance”
  • Session 4 – Equity for Patients and People; Joseph Andrew Shuman (University of Michigan), “Patient and Provider Perspectives on Precision Head and Neck Oncology” and T.J. Kasperbauer (Indiana University), “Incorporating Biobank Consent Into the Clinic: Challenges for Improving Patient Understanding”